“Lindsey, it may not be what you think,” my mom asserted, her voice breaking through my cacophony of wheezing. “Mom!” I tried to shout, but the sound of my interjection was muffled by my breathlessness. As my mom sped down the highway toward the ER, I couldn’t stop myself from saying the words I knew... Continue Reading →
The past few months have been filled with few ups and many downs. I’ve consistently endured health complication after health complication. After five months of appointments, scans, and a surgery, I thought the consistent string of complications would finally come to an end. I was wrong. In this season of life, I’ve been brought to... Continue Reading →
When I was thirteen, I received a friend request on social media from a guy in another state. We were both part of the same academic/leadership organization, and we were going to spend some of the summer together at a convention and a camp. Almost immediately after I accepted the friend request, the guy started... Continue Reading →
This blurry photo from six years ago still brings tears to my eyes. Throughout my 24 years with this disease/disability and its challenges, I’ve asked very few people to make accommodations for me. I’ve rarely spoken up about my limitations. I’ve sparingly sought to modify a rule or standard for my own benefit. Why? Throughout... Continue Reading →
While shaking my right hand, most people typically react to my misshapen hand in one of four ways: 1. The person quickly lets go of my hand as soon our hands collide. 2. The person lets go of my hand, quickly glances at it, and squeezes my hand again, attempting to apologize for the momentary... Continue Reading →
When I was in pre-k, I started praying for just one thing — healing. I knew doctors couldn’t “fix” me, but I believed that God could. At 24 years old, I’m glad He didn’t give me what I wanted in that season of life. Why? In this season of life, which has been filled with... Continue Reading →
I was standing outside my mom’s office when I noticed a young boy coming toward me. His eyes widened as he caught a glimpse of my right hand. Before I could even attempt to cover up my hands, the boy started screaming and running away from me. As I listened to his screams and held... Continue Reading →
I was born with a syndrome (or as I sometimes call it: a rare disease). Does that mean I’m disabled? Not necessarily. You could have a syndrome that isn’t disabling, and you could have a disability that isn’t caused by a congenital syndrome. You could even be a like me — someone who was born... Continue Reading →
May 2019: As my mom and I left Children’s the other day, we overheard two women discussing their travel plans. One woman was preparing to go to Monte Carlo, and the other woman was planning to go to another PGA tournament site. As they innocently conversed with one another, I wanted to scream. I, too,... Continue Reading →
When I was 11, my life radically changed within a month. I went into the hospital as an adventurous kid, but I left as a grown up. From then on, restrictions and limitations ruled my life. They formed a fence I had to stand behind as I watched everyone else live a seemingly limitless life.... Continue Reading →
Growing in the Groaning 