Longing for Nearness

It's a long hallway, but it's not long enough. My steps are limited, as is my ability to grasp what my doctor just confirmed. "You already knew what he was going to say," I remind myself as I approach the end of the hall. It's freeing to turn the corner and leave behind the clinic... Continue Reading →

The Unfortunate Event

“Lindsey, it may not be what you think,” my mom asserted, her voice breaking through my cacophony of wheezing. “Mom!” I tried to shout, but the sound of my interjection was muffled by my breathlessness. As my mom sped down the highway toward the ER, I couldn’t stop myself from saying the words I knew... Continue Reading →

We’re all a little different

“Hey, let me do it,” my sister whispered while reaching for my french fries. As she offered to feed me, I tried to count how many people were watching me fail to feed myself with my dysfunctional right hand. For just a moment, I want you to step into my shoes. You’re 23 years old.... Continue Reading →

Another Bump in the Road

“How long will this take?” I asked the MRI technician. As my body glided into the MRI machine, he replied, “About forty minutes.” Two hours later, I began to cringe in pain. “Stay still! Stay still!” I reminded myself. But I couldn’t. My hand felt like it was on fire. My back ached because of... Continue Reading →

The Progressive Disease

“It’s going to get progressively worse,” the doctor informed me. I smiled and nodded my head as I responded, “I know.” But I didn’t actually know. The past few years have been relatively “easy” in comparison to my adolescent years. As the major health complications decreased, I became increasingly convinced that life would progressively “normalize.”... Continue Reading →

“How do you deal with it all?”

May 2019: As my mom and I left Children’s the other day, we overheard two women discussing their travel plans. One woman was preparing to go to Monte Carlo, and the other woman was planning to go to another PGA tournament site. As they innocently conversed with one another, I wanted to scream. I, too,... Continue Reading →

Love well, listen well…

May 2019: The last few weeks have been difficult to endure. I planned to post about my health a week ago, but as I attempted to type a few words, throbbing pain radiated throughout the arm. I began to cry as I realized I wouldn’t be able to manage the pain much longer. When I... Continue Reading →

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