https://youtu.be/h8YbiZQJpHI In honor of CLOVES Syndrome Awareness Day, I came out of my blogging hiatus just to share why this day means so much to me. In this vlog, I’m sharing with you why awareness matters. For me, increasing awareness is not really aimed at helping others learn all of the symptoms/signs embedded in the... Continue Reading →
https://youtu.be/IQMObW9EfK0 In this episode, I share how I’m seeing some of my past pain as a patient undergo an exquisite repurposing. This repurposing helps me both see value in my role as a lifelong patient and remember that perhaps the pain I’m feeling now can/will be repurposed too.
https://youtu.be/iehJXmzzmqA In this episode we celebrate Blood Thinner Appreciation Day, the commemoration of living through my second pulmonary embolism experience in 2013. As I give you a sneak peek into how I’m celebrating this year, I also share why my personal celebration (and the days that followed) led me to grieve. In the end, I... Continue Reading →
It's a long hallway, but it's not long enough. My steps are limited, as is my ability to grasp what my doctor just confirmed. "You already knew what he was going to say," I remind myself as I approach the end of the hall. It's freeing to turn the corner and leave behind the clinic... Continue Reading →
“Lindsey, it may not be what you think,” my mom asserted, her voice breaking through my cacophony of wheezing. “Mom!” I tried to shout, but the sound of my interjection was muffled by my breathlessness. As my mom sped down the highway toward the ER, I couldn’t stop myself from saying the words I knew... Continue Reading →
When I was in pre-k, I started praying for just one thing — healing. I knew doctors couldn’t “fix” me, but I believed that God could. At 24 years old, I’m glad He didn’t give me what I wanted in that season of life. Why? In this season of life, which has been filled with... Continue Reading →
“How long will this take?” I asked the MRI technician. As my body glided into the MRI machine, he replied, “About forty minutes.” Two hours later, I began to cringe in pain. “Stay still! Stay still!” I reminded myself. But I couldn’t. My hand felt like it was on fire. My back ached because of... Continue Reading →
When I was in high school, I came across a Harvard journal article about Klippel Trenaunay Syndrome. I read pages and pages of research about a three year old female with a misshapen, port-wine stain covered upper body. “How weird,” I thought as I examined a picture of the little girl’s hands. “They look just... Continue Reading →
Ethan began to jog as I plopped down on the turf. I planned to jog with him yesterday evening, but my plans changed as soon as we entered the indoor football field. In the middle of the field, a college softball player was teaching a young girl to pitch. When I was around the young... Continue Reading →
“Finding out that your child is going to be born with life-threatening struggles is beyond overwhelming. How did I feel? I cannot explain the devastation that I felt. I could not bear the thought of losing her, nor could I bear the thought of her suffering. So I started to pray and plead to God.... Continue Reading →
Growing in the Groaning 