It's a long hallway, but it's not long enough. My steps are limited, as is my ability to grasp what my doctor just confirmed. "You already knew what he was going to say," I remind myself as I approach the end of the hall. It's freeing to turn the corner and leave behind the clinic... Continue Reading →
December 2019: This time last year Ethan and I began discussing what it would look like to let you enter into our world, our real world. I wondered how I could answer the questions few people have been brave enough to voice. I contemplated how to effectively communicate why conversing about diversity is so important.... Continue Reading →
October-ish 2019: “Mom, do you think this is what my life is going to look like from now on?” It’s an impossible question to answer, but I had to ask. If you keep up with my posts, you know that my health hasn’t been...swell. I’ve been referring to my health complications as a “season,” but... Continue Reading →
The past few months have been filled with few ups and many downs. I’ve consistently endured health complication after health complication. After five months of appointments, scans, and a surgery, I thought the consistent string of complications would finally come to an end. I was wrong. In this season of life, I’ve been brought to... Continue Reading →
When I was thirteen, I received a friend request on social media from a guy in another state. We were both part of the same academic/leadership organization, and we were going to spend some of the summer together at a convention and a camp. Almost immediately after I accepted the friend request, the guy started... Continue Reading →
When you’re born with a debilitating disease, you’re born with health complications. Your body doesn’t wait until you’ve had a long, “good” life to start failing you. I’m young, but I’ve endured almost 24 years of problems and pain. Ethan and I have married for a year and a half, but we’re veterans at upholding... Continue Reading →
May 2019: As my mom and I left Children’s the other day, we overheard two women discussing their travel plans. One woman was preparing to go to Monte Carlo, and the other woman was planning to go to another PGA tournament site. As they innocently conversed with one another, I wanted to scream. I, too,... Continue Reading →
I was getting ready to go to the library yesterday when I noticed coffee on the floor. I quietly grumbled as I grabbed a Swiffer pad and proceeded to clean. I didn’t really have time to clean, but I knew I needed to take just a few minutes to clean up the mess. Ironically, those... Continue Reading →
“I went to jewelry store after jewelry store trying to find Lindsey’s engagement ring. She wanted a simple pearl ring that she could wear on a necklace. Then I realized she would never see the pearl if the ring was hanging upside down on a necklace. I tried to explain my solution to several jewelry... Continue Reading →
When I was 11, my life radically changed within a month. I went into the hospital as an adventurous kid, but I left as a grown up. From then on, restrictions and limitations ruled my life. They formed a fence I had to stand behind as I watched everyone else live a seemingly limitless life.... Continue Reading →
Growing in the Groaning 