https://youtu.be/h8YbiZQJpHI In honor of CLOVES Syndrome Awareness Day, I came out of my blogging hiatus just to share why this day means so much to me. In this vlog, I’m sharing with you why awareness matters. For me, increasing awareness is not really aimed at helping others learn all of the symptoms/signs embedded in the... Continue Reading →
https://youtu.be/IQMObW9EfK0 In this episode, I share how I’m seeing some of my past pain as a patient undergo an exquisite repurposing. This repurposing helps me both see value in my role as a lifelong patient and remember that perhaps the pain I’m feeling now can/will be repurposed too.
https://youtu.be/iehJXmzzmqA In this episode we celebrate Blood Thinner Appreciation Day, the commemoration of living through my second pulmonary embolism experience in 2013. As I give you a sneak peek into how I’m celebrating this year, I also share why my personal celebration (and the days that followed) led me to grieve. In the end, I... Continue Reading →
It's a long hallway, but it's not long enough. My steps are limited, as is my ability to grasp what my doctor just confirmed. "You already knew what he was going to say," I remind myself as I approach the end of the hall. It's freeing to turn the corner and leave behind the clinic... Continue Reading →
“I’ll be honest with you, Lindsey. I had to look up your syndrome before this appointment,” the doctor bashfully admitted. “I have never seen or heard of CLOVES syndrome.” Though she seemed slightly embarrassed by her lack of knowledge, she found comfort in my silent response. I warmly grinned and nodded my head, indicating that... Continue Reading →
“It’s not real,” the kid said as he pointed at my right hand. I chuckled and replied, “Well of course it’s real, silly! It’s just a hand!” Before I could even finish my sentence, the kid was lunging toward my right hand. He grabbed my hand and proceeded to pull on it. He was attempting... Continue Reading →
October-ish 2019: “Mom, do you think this is what my life is going to look like from now on?” It’s an impossible question to answer, but I had to ask. If you keep up with my posts, you know that my health hasn’t been...swell. I’ve been referring to my health complications as a “season,” but... Continue Reading →
The past few months have been filled with few ups and many downs. I’ve consistently endured health complication after health complication. After five months of appointments, scans, and a surgery, I thought the consistent string of complications would finally come to an end. I was wrong. In this season of life, I’ve been brought to... Continue Reading →
I was standing outside my mom’s office when I noticed a young boy coming toward me. His eyes widened as he caught a glimpse of my right hand. Before I could even attempt to cover up my hands, the boy started screaming and running away from me. As I listened to his screams and held... Continue Reading →
When you’re born with a debilitating disease, you’re born with health complications. Your body doesn’t wait until you’ve had a long, “good” life to start failing you. I’m young, but I’ve endured almost 24 years of problems and pain. Ethan and I have married for a year and a half, but we’re veterans at upholding... Continue Reading →
Growing in the Groaning 