Longing for Nearness

It's a long hallway, but it's not long enough. My steps are limited, as is my ability to grasp what my doctor just confirmed. "You already knew what he was going to say," I remind myself as I approach the end of the hall. It's freeing to turn the corner and leave behind the clinic... Continue Reading →

Greater Awareness. Increased Action.

“I’ll be honest with you, Lindsey. I had to look up your syndrome before this appointment,” the doctor bashfully admitted. “I have never seen or heard of CLOVES syndrome.” Though she seemed slightly embarrassed by her lack of knowledge, she found comfort in my silent response. I warmly grinned and nodded my head, indicating that... Continue Reading →

On Speaking Up

“It’s not real,” the kid said as he pointed at my right hand. I chuckled and replied, “Well of course it’s real, silly! It’s just a hand!” Before I could even finish my sentence, the kid was lunging toward my right hand. He grabbed my hand and proceeded to pull on it. He was attempting... Continue Reading →

We’re all a little different

“Hey, let me do it,” my sister whispered while reaching for my french fries. As she offered to feed me, I tried to count how many people were watching me fail to feed myself with my dysfunctional right hand. For just a moment, I want you to step into my shoes. You’re 23 years old.... Continue Reading →

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