Another Bump in the Road

“How long will this take?” I asked the MRI technician. As my body glided into the MRI machine, he replied, “About forty minutes.” Two hours later, I began to cringe in pain. “Stay still! Stay still!” I reminded myself. But I couldn’t. My hand felt like it was on fire. My back ached because of... Continue Reading →

The Progressive Disease

“It’s going to get progressively worse,” the doctor informed me. I smiled and nodded my head as I responded, “I know.” But I didn’t actually know. The past few years have been relatively “easy” in comparison to my adolescent years. As the major health complications decreased, I became increasingly convinced that life would progressively “normalize.”... Continue Reading →

“How do you deal with it all?”

May 2019: As my mom and I left Children’s the other day, we overheard two women discussing their travel plans. One woman was preparing to go to Monte Carlo, and the other woman was planning to go to another PGA tournament site. As they innocently conversed with one another, I wanted to scream. I, too,... Continue Reading →

Love well, listen well…

May 2019: The last few weeks have been difficult to endure. I planned to post about my health a week ago, but as I attempted to type a few words, throbbing pain radiated throughout the arm. I began to cry as I realized I wouldn’t be able to manage the pain much longer. When I... Continue Reading →

The Uncommon Cold

We like to refer to the cold as a “common” illness. It spreads easily, and we assume everyone feels similar symptoms: Runny nose. Congestion. Coughing. Sore throat. We know these symptoms are common, but most of us aren’t aware of the uncommon symptoms a person with a disease/disability may endure when afflicted with an illness... Continue Reading →

“I have no magic.”

"I have no magic." My childhood hematologist would always grimace as she recited those four words. She really meant, “I can’t fix this, but I wish I could.” After 23 years of battling recurring health complications, I still don’t know how to “fix this.” I still face the same complications over and over again. I’ve... Continue Reading →

Press On

Ethan began to jog as I plopped down on the turf. I planned to jog with him yesterday evening, but my plans changed as soon as we entered the indoor football field. In the middle of the field, a college softball player was teaching a young girl to pitch. When I was around the young... Continue Reading →

Unreasonable Expectations

Do you usually think about how to open a door before you walk through it? When you’re at a coffee shop, do you think about how you’re going to grab your coffee, receipt, and change all at once? As the Lord’s Supper tray comes toward you at church, do you think about how you’re going... Continue Reading →

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